1000 Faces

Back in July 2010 I posted a video here titled The Beauty of Different. The video was put out to promote Karen Walrond’s book of the same title.

Walrond is an award winning photographer and I enjoy her Chookooloonks website so much I put one of her “You Are Beautiful” buttons up on my sidebar. I love it!

One of my favorite things on her site in the 1000 Faces Project. She takes the most amazing portraits and somehow…every one of them is beautiful. These are real people, not airbrushed supermodels. And yet. And because of that, they are so very gorgeous.

Looking through the faces, I wondered…how does she do it? How does she capture the beauty, really pull it out…in each person? And then it hit me. She loves them. What we are seeing in the photos is love reflected back to her.

Looking at the faces makes me feel so connected to the beauty in everyone. It makes me look at people differently.

Look out at the world with love and get it back. So simple.

So powerful.

Posted in appreciation, beauty | Tagged , | 6 Comments

Saving Sammy PANDAS OCD

Remember when bloodletting was accepted as standard medical practice? Or when doctors didn’t believe in germs and refused to wash their hands between patients?

Or when OCD was just a mental illness, and not much could be done other than attempt to manage the symptoms?

This is Beth Maloney and I believe she’s going to go down in the history books as a hero. She refused to take “no” for an answer, and figured out her son’s severe, debilitating, body-snatching OCD was caused by a strep bacteria, and could be cured with anti-biotics.

Her boy was twelve years old, bright, a math whiz at his school. Within a few months he could no longer leave the home, bathe, tolerate touch, sleep, and could barely eat.

Like many of us with special needs kids, she was given a lot of disrespect and abuse from those in the medical community. Like so many of us, she’s had to do a lot of research herself and has worked very hard to find the brave maverick doctors who offered her hope and eventually healed her son.

How many people are locked up, institutionalized who might be able to be helped this way?

Maloney wrote a book about her experience, titled Saving Sammy which will no doubt help countless children suffering from OCD and other mental disorders. I love the recent picture of her above. It speaks of victories, and full lives, freedom and hope.

This is Beth and Sammy on The Today Show:

Visit msnbc.com for Breaking News, World News, and News about the Economy

Beth Maloney will be interviewed on February 11th at 8:30 on Sirius XM’s Doctor Radio from NYU “About Our Kids.” It’s a call in show 877-NYU-DOCS with a national audience.  If you have questions for her, do phone in. XM 119, Sirius 114

8:30 am ET live
8:30 pm ET replay
5:30 am PT live
5:30 pm PT replay

Click on the book cover for the Amazon link.

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Chat Pack


HT had bedtime duty last night; I was up in my attic office writing. When I finally came down, I peeked in on each kiddo and found Riley still awake in her bed. I came in and gave her a kiss and she said, “I was hoping you’d come down. I thought we could play Chat Pack.” She took the little Chat Pack box out from under her covers and presented it to me.

Chat Pack is a game I picked up a few months ago at a nearby independent book store. We don’t sit down to a big family dinner every night at our house, but we do manage it at least a couple of times a week and we all look forward to playing Chat Pack after we’ve finished eating.

It isn’t so much a game, (there are no winners or losers) as a conversation starter.

In your opinion, what would be the most enjoyable thing about being a dog or a cat?

What is the most unusual thing you’ve ever found?

Those kinds of questions. It is fun hearing what the kids have to say, and it’s been surprising to find Riley so…well…chatty.

I’d been gone most of the day, and then up in my office writing for the evening, filling my cup after a long week of being cooped up inside with the kids. It never occurred to me Riley would miss me or want to connect with me. She’s never taken the initiative like that. My heart just melted, looking at her with the Chat Pack cards, her room lit up with twinkling stars from the projector she bought with her birthday money last year. To think of her waiting for me, hoping I’d come down.

It was late, so I told her we could do one question and then we’d all do Chat Pack at breakfast in the morning. She was happy with that compromise.

It made me realize how much kids on the spectrum really do love us, even if they can’t or don’t tell us in so many words.

This morning, at the kitchen table it was hot chocolate, Chat Pack, goofy kids, a beautiful man, and a mom with a very full and grateful heart.

I love me some Chat Pack. I do.

Posted in Asperger's, family | Tagged , | 7 Comments

Clay 2011

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After our first disastrous run at homeschool clay class last year, I was afraid to ever go back. What seems to be true though…. is some of our most tumultuous moments appear to stick with me, way longer than they do my girl. We took a session off, and then she was just begging to jump back in. I couldn’t fathom why she would want to. The thought made my stomach hurt. But she was adamant. This time of course, Seth is on board too.

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The teacher is an amazing woman, who simply loves kids. She wasn’t phased by Riley’s screaming or my tears last time. She gave me such a huge hug back then, on that darkest day. Somehow, miraculously, she was glad to see us again.

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Just a couple of weeks into the current session she… (gulp)…she wanted to let the kids try their hand at the wheel. You know…the wheel, which requires hands and feet to work together. The wheel which can be highly frustrating. The wheel, which can throw your clay across the room if you aren’t careful. The wheel which can collapse your masterpiece instantly if you don’t hold onto it just right.

I’m not Catholic, but between you and me? I crossed myself for luck.

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Both kids worked really hard.

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Riley’s first crack folded in on itself, just as she was getting on a roll. And you know what she did?

She tried again.

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She’s doing so much better this time. Jingle comes with us now, but has not really been needed.

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(We always wipe our bottoms because the glaze will stick to the kiln if we don’t).

Seth is having fun too.

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I’m so glad I didn’t let my fear keep them from signing up this time.
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Sometimes what seems like the worst scenario can propel you forward into new, uncharted territories, making you realize things have to change. Things have to give.

That awful day last year, when I lost my mind and said things I never wanted to say to my child, I sat on a window seat in our bedroom, distraught. Practically catatonic with grief, I held up the camera I’d been absentmindedly holding in my hand, put it in front of my face and pushed the button. I didn’t publish the photo because in it, I looked hideous. Ugly. Old. Raw. Used up. Like those photos you see of meth addicts who age 30 years in 12 months. I didn’t want anyone to feel sorry for me, because I didn’t feel I deserved sympathy. I felt like the biggest loser monster mother ever. At the time I was certain all my hard work, all the mother-love I’d given this child her entire life had been smashed to smithereens. (Of course that was untrue).

When I look at the photo, I see a mom who is beyond exhaustion. The expression on my face is pure grief.

Todd took Riley to a couple of those clay classes last year. Talking about it the other day he described it as “inhumane,” what we all went though during that time, dealing with her truly debilitating anxiety.

I learned so much from that awful experience. Huge life lessons, and not just about Riley and parenting, but about people and about judgement.

Most of all, that awful day pushed us to find more help for our girl, and to take better care of me.

Oh Riley. You are and have always been my teacher.

One night recently, Todd and I were tucking her into bed. It was a lighthearted mood, with both of us being silly, kissing her on opposite sides of her head and I said, “Riley I am so sorry for every time I’ve ever yelled at you, your whole life.”

Todd added, “Me too!”

(FYI we’ve hardly ever truly yelled at either one of the kids).

She sighed, reached out her hands and lovingly patted each of us. After a moment she said,

“We’re all humans.”

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And forgiveness. I learned about forgiveness. Forgiving myself, and forgiving those who may have judged me harshly. We’re all doing the best we can with what we have to go on.

“We’re all humans,”she said.

That we are little love-bug. That we are.

I love you beyond measure my sweet, sweet girl and I am so very blessed to be your mom.

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Posted in Asperger's, Parenting, special needs | Tagged , | 9 Comments

You Are That, From the Chandogya Upanishad, Chapter 6

Click here to read a beautiful passage of a father teaching his child Who He Is.

My babies…you are part of everything good and beautiful. Integral parts of the larger whole.

Oh the glorious beauty of words.

Oh the endless sources of inspiration, always more to be discovered, God is everywhere, do you see?

The ever unfolding of All That Is.

You are that.

We all are.

Amen.

Posted in spirituality | Tagged | 4 Comments

Driving in the Snow

Driving in Snow

Driving in the snow, I look in my rearview and talk to the kids.

“You know, I’m lucky. I had a really awful beat up car when I was young. It had a big dent in the side. Sometimes I had to start it on a downward incline to pop the clutch.”

They look at me funny. They don’t know what “pop the clutch” means. They’ve never had a car break down, leaving them stranded, (such was my life for way too long).

I continue.

“When it snowed, I would take it into empty parking lots, and drive around, swerving, hitting the breaks hard, letting it spin out, getting a feel for how to drive in the snow. It’s why I’m not nervous driving in the snow today. I wouldn’t have gotten that experience with a nice car. I’d have been afraid to damage it.”

They smile.

“So you see, I didn’t like having a crappy car back then, but the experience really served me.”

Riley says, “I hope when I’m sixteen I’ll get a car.”

Seth asks her, “What kind do you think you’ll get?”

Before she can answer I interject cheerfully, “Hopefully a beater!

Silence for a while and then Riley says,

“Mom, I’d really prefer a nice car….no offense.”

~

*Photo from http://www.bestcarsguide.com

Posted in Parenting | Tagged , | 11 Comments

On Heels and Meditation

*image from boutiques.com

I was formally introduced to meditation in my early twenties. My karate teacher had invited a meditation instructor to come teach us how.

I knew nothing about this woman but I remember judging her. What was she doing waltzing into a feminist karate studio wearing a skirt and heels? What could a woman who intentionally “hobbled” herself for fashion…to look good for men, have to teach me about anything?

Heels. Please. Can’t even run in them. How smart is that? This was my thought process.

We sat on chairs and she talked about quieting the mind. She played music and instructed us to focus on the breath.

And I did.

And for some reason this meditation thing was easy for me. Unbeknownst to me, I’d been doing it all my life. Lying on my bed as a child, looking out the window at the leaves on the trees until I felt it. The disappearance of the little self. The merging with All that Is. Meditation was familiar.

For a long time I tried to put intentions to my meditations. I would want to be a better writer. A better mother. A better person. Help me be better. Striving, striving. Take away my not good enough-ness. Please.

Take away my arrogance.

Take away my longing.

Take away my temper.

Take away my unlovable-ness.

But lately something else is happening. I’ve just been asking God to be with me. I abide in You, and You abide in me. Let’s just breathe together. Breathe me God. Just for the joy of connecting.

No striving.

Just let me sink, deeper and deeper into You. Let the little me disappear until all my molecules are merging with All that Is. Just like when I was a child. Let me be in this a while.

Let me float here. Out of this body. Out of time and space. Nowhere. Everywhere. Buoyant.

That first meditation teacher…the one in the heels, generously gave us each a free cassette tape to take with us. I still have it.

I have no idea who she was, but I’m thankful for her.

And here’s the thing….I’m never gonna wear heels. The difference after all these years is, I no longer judge those who do.

Posted in meditation | Tagged | 5 Comments

New Photo Booth Header

You may have noticed my new header. Pictures of us, mugging for the camera on my new computer.

We were just playing. We’d never used the “photo booth” function before. Headers were not on my mind when we took them.

In looking for a new picture, I couldn’t find any that were panoramic. Nothing seemed right. Then I noticed these few.

Could I really be that exposed? I mean…no make up? Possibly not even a shower that day? And the lighting? It ain’t so good.

But to me, this is what writing is about. Honesty.

This isn’t the blog of someone who is trying to portray herself as something she’s not. Here, you get the good, the bad and the ugly.

No polishing and showing you only what makes me shine.

It ain’t a public relations site.

So…for now, I’m keeping these shots as my header. They show the joy of this family. They show someone who is trying not to take herself so darn seriously. I think there is beauty in that.

Added bonus…any other photos I post of myself will by comparison seem quite glamorous.

Lovingly yours,

MO’N

Posted in Uncategorized | 12 Comments

Organic Learning

Riley woke up this morning with two questions:

1) Does my hair look like a rat’s nest?

2) Do rats really have nests?

And so we’re studying the habitats of rats today.

And Riley is writing more of her graphic novel.

And Seth is playing. As in…he’s conceptualizing a play, involving Harry Potter characters dressed in Star Wars costumes. There are lasers and catapults and hang gliders and crashes.

After lunch we’re off to homeschool music class, for rhythms and dance. It’s a “typical” class, in a room that’s kind of like a small auditorium. Last week was the first week, and ten years into this game, I got to sit in the audience, like all the other moms. I didn’t have to be “room mom.” Code for one on one aide.

Riley had one anxious moment, but she asked to “pass” on her turn, and then got right back in. I didn’t have to intervene. Both kids had so much fun.

The better it gets, the better it gets.

We learn, learn, learn as we go.

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Hot Toddy

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He took the kids to The Great Lakes Science Center today so I could have a few hours home alone.

I love him.

A whole heck of a lot.

Posted in Uncategorized | Tagged | 4 Comments

Hopeful Parents

I’m at Hopeful Parents today, talking about our recent evening at the theater.

Meow.

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She Loves Me

Last night I snuck away into the bedroom to read for a bit. Riley came in to say goodnight and snuggled under the covers with me for a moment. We decided to say her prayers right there, rather than wait to go into her room.

My dreams will be happy and joyful.

I am loved.

I am healthy, loving and wise.

God helps me know what to do.

Tomorrow will be a wonderful day.

Thank you God.

Amen.

We talked about her “happy thoughts” from the day, as I stroked her hair.

There were many happy thoughts.

When she got done listing them, she nestled her head down deeper into my shoulder, sighed, and said,

“I love you.”

In ten years it was the first time she ever said it first.

Posted in Uncategorized | 12 Comments

“Get to” vs. “got to,”(at a fast clip)


After no exercise for two weeks (due to sickness making its rounds in the house) I walked fast for thirty minutes on the treadmill today.

It was awesome.

Ramped up on appreciation from a morning writing exercise I do, I hopped on that baby with enthusiasm.

Woo-hoo! Look at me go! Feels so good to move!

I love my body. Today I’m not thinking about that roll around my middle. I’m thinking about legs that work. Feet that feel good. My mom says I started walking by 8 months. What good feet I have, taking me all these steps for 42 years.

The human body. So cool? How is it I’m walking on this treadmill? How is it I’m standing upright at all? I think of skeletons hanging in biology classrooms. They’d just collapse if let off their hooks, but living, breathing bodies? We get to stand! We get to walk! Spectacular life energy holds us up. How the hell? Woo-hoo!

Scratching an itch on my cheek. How did I do that? I didn’t put out a memo and request my hand reach up to my face. I didn’t have to pay for it. I didn’t even have to think about it. I itched. I scratched. End of story.

I try this several times. Hands raised in the air.

Back down.

All while walking at a fast clip.

Up again! Hands in the air. Wave ’em like you just don’t care!

A miracle!

Seth walks in the room, ready to talk my ear off about Lego.

“SETH!” I greet him,

“HOW DOES IT FEEL TO BE AS GORGEOUS AS BRAD PITT? BRAD FROM A RIVER RUNS THROUGH IT, NOT ANGELINA’S BRAD WITH THE DIRTY LOOKING SCRAGGLY BEARD?”

Without a word, Seth slowly backs out of the room.

I’m loving this treadmill, this walking.

On the wall to my right hangs a picture I bought, during a trip to West Virginia; the last time I saw my friend Clarissa. The last time I’ll ever see her.

“If I could.”

She held it for me as I dug my wallet out of my purse to pay for it. I reach out now with my miraculously functioning arm, and still walking, I touch it. She touched it, and now I touch it and some of our molecules mix.

Step, step, step.

I think of a dinner on the Caribbean cruise I went on last year, where a new friend corrected several of us at the table…urging us to begin saying, “I get to….(insert anything) instead of saying, “I’ve got to…..(insert anything). Such a small shift in words. Such a huge shift in energy.

I have a highly complex, beautifully functioning body.

I’m so lucky I “get” to do the treadmill.

I get to be alive.

I get to do countless wonderful things.

I get it.

Posted in Uncategorized | 13 Comments

Thule le Mama Ya

Sunday was our latest Windsong concert. It was my fourth concert with the group and it was my favorite so far. That might have something to do with the fact it was the first time I felt like I mostly knew what I was doing. I’d never been a confident singer and it took me a while to get acclimated (I’m in the middle, second row).

The songs were so much fun this time.

Thule le Mama ya is inspired by the Zulu phrase “thula mama” meaning, “Don’t worry Mama.” Singing with this wonderful group is one of the times my worries can’t get me. I’m totally in the moment.

Don’t worry Mama.

Things have a way of working out.

They really do.

Posted in Uncategorized | 6 Comments

True Colors Gay Men’s Chorus of LA

Watching this video took me on a huge roller coaster of emotions. I love the slow face shots at the beginning. Each person…all of these men, what they have been through personally in a society which discriminates against them for simply being who they are. Their bravery.

As the video progresses, my heart just seemed to open wider and wider. Cyndi Lauper’s True Colors, written for her friend with HIV. The despicable history of our government in the 80’s not giving a shit about the AIDs epidemic because it was primarily affecting gay men. As if they were disposable. The continued battle to help those affected get the services they need.

The love I have for my daughter and anyone who is at all “different” in some way.

The physical beauty of these men, all of whom appear lit from within, and how could they not be in the context of this video, and the “it gets better” reason for doing it.

The joining of more and more supporters and loved ones.

The healing, spiritual power of music, singing, voice.

The deep knowing that in my childrens’ lifetime, this BS is going to stop. As a society we’re not going to put up with it anymore.

My absolute certaintly that love prevails.

To the gay people in my life, I admire you and I believe in a day when no one will have to hide or hurt for being who they are.

Love.

Posted in music, Uncategorized | 7 Comments

Seth’s Manifestation of His Puppy

One of the biggest regrets I had when I stopped blogging was not having the opportunity to share Seth’s puppy with you.

Back in September, I did put up a piece about it over at my friend Betsy’s Autism Law of Attraction blog. Seth is the most positive person you are going to meet. No coincidence he’s also amazing at manifesting his heart’s desires.

Anyway…I hope you enjoy the story of Seth’s manifestation of Yippee.

They are one happy pair.

Posted in Abraham, law of attraction, special needs siblings | 8 Comments

What I Do When I Get Scared

Sometimes I feel so scared.

I wake in the night, feeling like life is just ticking away. So little time. At the theater the other night, I see an actor back flip through the air repeatedly and I know that is one thing I’m probably not going to experience this lifetime. What’s it like? Flying through the air with such freedom in your body?

I should have been a gymnast. Or a dancer. What would that have been like? Not a Black Swan miserable pain and suffering dancer…but…just….I don’t dance enough.

When I feel that frightening…time ticking away feeling, I have to remind myself we’re all eternal. What I don’t get to experience in this lifetime, I’ll get to experience in another one. Most of the world believes in reincarnation, btw. And there are many, many stories which lead me to believe it is true. We are but a beautiful bit of a much larger soul, which is part of a much larger ever expanding Universe.

Whatever I have done so far, is enough, even as I look forward to experiencing so much more of what this life has to offer.

One of the things that helps me when I feel scared is a set of questions from A Course in Miracles.

Where would You have me go?

What would You have me do?

What would You have me say and to whom?

This very blog post is a response to those questions. For me, just asking the questions and creating space to listen for answers takes away feelings of fear, helplessness or despair. Just honoring that I do have something of value to offer, no matter how small. One thing which also helps when I feel scared is listening to Rev. Michael Beckwith’s Living From the Overflow. Maybe it will help you too. I felt moved to mention it.

Love.

Posted in spirituality, Uncategorized | 6 Comments

German Shoulders


Read or listen

On Tuesdays, Riley has music therapy at the Cleveland Music School Settlement. This has become a special time for Seth and I. We head to the lounge on the second floor, and I give him $0.35. He goes to the vending machine and procures himself a small pack of Juicy Fruit.

He offers me a piece, pops one into his own mouth, and we sit together on a sofa, hunkering down for 45 minutes of reading Indiana Jones together. We’ve made it through Raiders of the Lost Ark, and Temple of Doom, and we’re now half way through Last Crusade. Indy and his father are trapped, tied to a chair. When the room goes up in flames, Seth’s eyes go wide.

When Indy poses as a ticket taker on a huge aircraft, slugs the bad guy, then turns to find the rest of the passengers intimidated and waving their tickets, Seth chuckles. There is a lot of humor in these stories and Seth gets every punch line. However, nothing is more funny to him than when his mother misreads “German soldiers” as “German shoulders.” I don’t mean to do it, but I swear it happens every time.

I used to feel guilty about dragging Seth to all of Riley’s therapies and appointments, but not anymore. These are some of the best one-on-ones we have. Reading, laughing, connecting, looking each other in the eye, chomping Juicy Fruit.

Seth and his mom.

We’ll always have German shoulders.

Posted in special needs siblings, Uncategorized | 9 Comments

Back in the Saddle

Listen or read: (I’ve been playing around with podcasts. Not gonna have them on every post. Have not figured out how to stop it from opening in a separate window. It’s just for fun).

Our family went down like dominoes last week with a stomach bug. First Seth, then Todd, then me and finally Riley. The night it was my turn, I kept waking, sweaty and nauseous. Every time I woke up, I tried to take my mind off  how I felt by deliberately seeking things to be grateful for.

I know this is just a stomach bug. It will be gone in a couple of days.

Looking around the room, in the glow of the hall light, I saw the door.

Hinges. I am grateful for hinges. Thank you for doors and for whoever invented them.

HT snored next to me.

Thank you for him. I know I could wake him and he would comfort me. I won’t, but I could. Thank you.

I’d fall back asleep, and rouse a couple of hours later.

I’d start to panic, nausea is a trigger for me, but then…

Thank you for running water. Thank you for toilets that flush.

Thank you for this warm house.

I went downstairs on the couch, not wanting to disturb Todd with my tossing and turning.

Thank you for this pillow and this blanket.

I turned on the TV.

Thank you for TIVO and for cable to help me take my mind off  how I feel.

I watched two episodes of Sex and the City.

Honestly I forgot to be thankful for anything else after that, but it was a pretty good run.

Five days since the first O’Neil fell, we’re back in the saddle.

And I’m thankful.

Posted in appreciation, podcasts, Uncategorized | 12 Comments

And then, somehow she just knew, it was time to start again

Photo on 2011-12-27 at 23.00

So it looks like I’m blogging again. I mean, here I am, in a “new post” page, feeling ready to roll. It just feels like time.

A lot has happened in the last five months. We stayed in Cleveland. Todd got a new job. Seth got a puppy of his own. Riley is doing extremely well, and we decided to home school Seth too. My sister fell in love and moved to Texas. My dear friend Clarissa died. I wrote almost every day, but nothing for a book. At least I don’t think so.

Back in August, I was overwhelmed in so many ways. I’d kind of lost my footing and needed time to figure things out. Needed to put my own private process first, for the good of myself and my family. I wasn’t sure I’d ever pick up this blog again. Blogging itself had started to feel unhealthy for me. It’s a whole animal of its own, isn’t it? It can buoy you; and it can kick up your worst insecurities.

So I come back to this page a little stronger and wiser, I hope. And more deliberate with my intentions.

If you’d like to read along, I’d be honored. If you think it’s crap I stopped writing here and now I’m starting again, and you never want to read another word of mine, I honor that too.

Wishing you more self-love, more honoring whatever is right for you, in 2011.

Breathe that in.

Let it be.

And so it is.

“A bird doesn’t sing because it has an answer, it sings because it has a song.”

-Maya Angelou

Posted in Uncategorized | 35 Comments