Seth had a bad reaction today during his second IVIG infusion for his immune deficiency. He’s okay now, but it was not good.
He did fine his first infusion, and he was fine today, and then they increased the IV rate. Shortly after that, he became nauseous and needed to pee, so I took him with his IV pole into the bathroom and left Riley in the infusion room. Once in the bathroom, Seth became really ill and began throwing up. I left him for one second and ran to the office, shouting from the door for someone to help, and the only one who answered was Riley. I don’t know where the rest of the staff was, maybe in with other patients.
“Riley, tell them Seth is sick.”
She did. Soon a nurse was there and she stopped the infusion.
I sat Seth on the toilet seat, and he kept throwing up into a waste basket, but he could barely hold his own body up, so I kneeled on the floor facing him, and he slumped onto my shoulder, moving me out of the way every so often so he could puke. He kept saying he wanted to lay down, but I refused to let him lie on the floor in the bathroom.
Finally, I let him kneel on the floor with his arms resting on the toilet seat. I didn’t like the idea, but it was a one seater bathroom, we were the first appt. of the day, and I figured it had probably been cleaned overnight. My knees couldn’t take kneeling like that to support him much longer.
So kneeling, his forearms on the toilet seat, I’m rubbing his back and there is the sound of an explosion. He had massive liquid diarrhea in his pants and didn’t even react, he was so completely out of it. I’m trying to take his pants off, and clean him up, and hold him up, and where the fuck is the nurse? And she comes in after what was probably five minutes but seemed like an hour and takes his temp. His blood pressure was 80 over 40. She started a different IV, just fluids.
Keep in mind, as all this is happening, Riley is having a problem with her brand new braces, and there are metal wires that have come loose and are poking straight into the backs of her cheeks, and she will not survive the weekend if we don’t get to the orthodontia office before they close in the next two hours. If all had gone well, we’d have had plenty of time.
With my cell I call Todd at work to ask him if there is a possibility he could come help me. As I explain what they are about to do, (give Seth an IV push of a med to help the nausea, and another one to help the inflammatory reaction, Todd the hospital pharmacist starts yelling at me through the phone YOU DO NOT GIVE THAT MED IV PUSH,...as the nurse is pushing it in, and Seth starts crying because it is burning..BECAUSE IT ISN’T SUPPOSED TO BE GIVEN IV PUSH) and I’m on the floor in the bathroom holding him up with Todd mad in my other ear and my baby is so sick, and Riley is God knows where, on her own.
We got Seth back into the infusion room, and he was pretty wiped out. He looked so pale, and weak, sitting back in a recliner, wrapped in nothing but a blanket from the waist down. I had not thought to bring extra clothes in case my nine year old pooped himself. I held him and rubbed his forehead and Todd came bursting in the room and Seth opened his eyes in a flutter and said in a tiny weak voice, “Hi Dad. How was work?”
I had to bury my face in my shoulder to hide my tears. Our boy is so freaking sweet, he feels like death and he inquires about his dad’s day the second he sees his him. Todd got all choked up too.
Finally, we got him settled, feeling better, and we continued the IVIG at a very slow rate.
Todd took Riley to the orthodontist, and came back quickly.
After we finished the PA came in to talk to us. In that way many doctors have of not wanting to take accountability he suggested maybe Seth has the flu, and asked if he’d had his flu shot? The child was fine, they increased the IV rate, he had a reaction. It isn’t the fucking flu.
“No. He hasn’t had the flu shot and he won’t be getting a flu shot.”
“Do you want to tell me why?”
What I said was, “No. We’re done talking about this.”
What I meant, and what I’m pretty sure came across was, “If you keep going with this, you are going to be a freaking carcass before lunch.” I’d had enough. And I am no longer in the business of trying to convince anyone about anything. If you don’t know flu shots are filled with crap and ridiculously ineffective, and about profit rather than public health I don’t know what to say. It’s not worth my energy to debate you.
“Just considering all the possibilities,” he mumbled upon retreat, defeated. I’m sure he’s pitying my “ignorance” as much as I pity his.
We finished the infusion. Seth is home. And he’s fine. He’s playing with his iPod. His appetite is good. No flu.
I am so jacked up right now I probably didn’t need coffee or the two donuts I just emotionally consumed.
Two down, four to go(infusions, not donuts, I’m done with donuts).
I sure hope this IVIG helps our boy.