Category Archives: special needs parenting

Carmax Love.

HT and I had a wonderful experience this week buying a car at Carmax. We were left alone to browse a huge lot of cars, and then we came inside and used a computer to narrow down our search. We … Continue reading

Posted in special needs parenting, Uncategorized | 10 Comments

Take Your Head Out of the Sand

When Riley was three, I was attending a weekly meeting to discuss A Course in Miracles. I’d found the book a couple of years prior, and dabbled. I felt better every time I picked it up and read a little. … Continue reading

Posted in autism, bio-med, special needs parenting, spirituality, Uncategorized | 5 Comments

Witness

Last night was the 8th grade graduation at Riley’s school. Riley is in 7th grade, but she really wanted to go. It was her birthday yesterday…13! And she wanted nothing more than to spend her evening seeing her 8th grade … Continue reading

Posted in appreciation, Love., special needs, special needs parenting, Uncategorized | 12 Comments

Amazing Self Advocacy at the Dentist!

The kids had dental cleanings scheduled for after school today. Last time, Riley really wanted me to go back with her. This time, as I’ve done every time, I asked if she wanted me to join her? Or was she … Continue reading

Posted in appreciation, autism, PANDAS, PANS, special needs parenting, Uncategorized | 8 Comments

Wil of God

                          Today is the day! Carrie Wilson Link’s long awaited book, Wil of God, is released. “Wil of God is the story of a tightly wound special needs … Continue reading

Posted in autism, memoir, special needs, special needs parenting, spirituality, Uncategorized, Wil of God, writing | 6 Comments

Dentists and Autism

Just before leaving to pick up Seth at school yesterday, I got a reminder in the mail from our most recent dentist. It’s time for cleanings. In the car, I found myself getting more and more agitated. This is the … Continue reading

Posted in appreciation, Asperger's, autism, special needs, special needs parenting, Uncategorized | 14 Comments

Safety

Seth could not sleep last night. When he re-entered school this year after being homeschooled for two, the biggest stress for him was not the academic work, not the social aspects of making new friends, but the fire and lock … Continue reading

Posted in appreciation, Parenting, special needs parenting, spirituality, Uncategorized | 15 Comments

Brain on Fire

I recently read Brain on Fire:My Month of Madness by Susannah Cahalan. It is about a young woman working as a reporter in NYC, who suddenly shows signs of psychosis. She spends over three weeks in the hospital experiencing mania, … Continue reading

Posted in autism, bio-med, PANDAS, PANS, special needs parenting, Uncategorized | 5 Comments

Calming Tourette’s With Dental Appliances

I had Riley at the orthodontist’s today and we got to talking about Seth and his tics. The doctor told me about work being done to help patients with Tourette’s using dental appliances to stop the tics. Amazing. Read more … Continue reading

Posted in PANDAS, special needs parenting, Uncategorized | 8 Comments

She Can Do Anything!

In June, I posted this, about Riley facing her fear of deep water and also conquering the dratted climbing structure that had been the bane of our existence for years. In the post I asked, “What’s next, riding a bike?” Well. … Continue reading

Posted in special needs parenting, Uncategorized | 15 Comments

Barbara Azzara,Teaching Excellence Not Perfection

A little background. Probably twenty years ago, my friend Anna mentioned something casually in conversation about Emmanuel’s Book: A Manual for Living Comfortably in the Cosmos. This was when I was living in the DC area. I filed it away in … Continue reading

Posted in appreciation, growth, Love., Parenting, special needs parenting, Uncategorized | 5 Comments

Families of children and young adults with disabilities were asked what they might have told themselves on the day their child was diagnosed. This is what they said.(One of them is HT).

Thank you Elizabeth Aquino for doing this project. Your contribution about Sophie’s eyes gave me chills and made me cry. Tweet This Post

Posted in special needs parenting, Uncategorized | 4 Comments

We Might Need to Retire the Wig

For the second day in a row, Riley has come home from school, finished her snack and got cracking on her homework. It’s as if she enjoys it. She’s so stoked to do it. She loves crossing all the things … Continue reading

Posted in Asperger's, special needs parenting, Uncategorized | 7 Comments

100% Huggable

I am feeling moved to write about the Berard Auditory Integration Therapy Riley received when she was little. When I have those little winks to share something, I tend to think there is a reason. This little baby was debilitated by certain … Continue reading

Posted in appreciation, Asperger's, autism, bio-med, special needs parenting, Uncategorized | 6 Comments

The Call

Today is the first day of summer camp for the kids. I had an appointment for an educational evaluation for Riley, so Todd dropped them off. He said our girl bopped right in, introduced herself to new counselors, greeted ones … Continue reading

Posted in marriage, special needs parenting, Uncategorized | 10 Comments

What is Happening?

A little boy, one we don’t know, swam over to Riley as she was sitting on the edge of the pool, tentatively easing her way into the water. He was about ten. As he approached her he asked, with a … Continue reading

Posted in autism, special needs parenting, Uncategorized | 5 Comments

Look at her go!

It’s been a big week for Riley. Over the weekend she had four girls sleep over. It went off without a hitch. Total success. Yesterday, our second day at the public pool this season, she took both feet off the … Continue reading

Posted in appreciation, Asperger's, special needs parenting, Uncategorized | 12 Comments

Helicopter Mom

It’s not that there is a shortage of things to write about. There are always a million things going on, only a teeny portion of which ends up here on the ole blog. Finding time has been the challenge. Doing … Continue reading

Posted in Asperger's, autism, bio-med, IVIG, PANDAS, special needs parenting, Specific Carb Diet, spirituality, Uncategorized | Comments Off

Swim With a Stud-Muffin

Living from the Heart is offering an amazing dolphin retreat in Sept.                   This is Seth with Amizcle, (Uh-MEEZ-clay) the enormous 600 lb playful loving dolphin stud-muffin (he’s got like 18 kids). … Continue reading

Posted in appreciation, Asperger's, Dolphin Therapy, Mexico, special needs parenting, Uncategorized | 3 Comments

A Camper’s Dream

This will be Riley’s fourth year of music camp. From her first summer there she’s had her eyes on the prize. She wants to be a camp counselor.  One of her music therapists heard of this dream a couple of … Continue reading

Posted in appreciation, Asperger's, special needs parenting, Uncategorized | 11 Comments