- The day the child realizes that all adults are imperfect, he becomes an adolescent; the day he forgives them, he becomes an adult; the day he forgives himself, he becomes wise. -Alden Nowlan, poet, novelist, and playwright (1933-1983)
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Category Archives: special needs parenting
Swim With a Stud-Muffin
Living from the Heart is offering an amazing dolphin retreat in Sept. This is Seth with Amizcle, (Uh-MEEZ-clay) the enormous 600 lb playful loving dolphin stud-muffin (he’s got like 18 kids). … Continue reading
A Camper’s Dream
This will be Riley’s fourth year of music camp. From her first summer there she’s had her eyes on the prize. She wants to be a camp counselor. One of her music therapists heard of this dream a couple of … Continue reading
Finding my way on the deck
Right this moment, I am fine. I keep telling myself that. Today was a rough day. I have been slaving in my too small kitchen for a month, making every morsel for my family from scratch. It’s been hot. We … Continue reading
Craving
In the kitchen. A lot. Breakfast today: It was homemade yogurt with fruit. I put honey and vanilla in the yogurt, then some cinnamon, and added frozen fruit to Riley’s, a homemade spice muffin crumbled into Seth’s. He didn’t love … Continue reading
The Grump Family
I have been dealing with a very bad cold since Tuesday. The kind that doesn’t allow you to sleep because so much is going in with your throat, ears, nose, sinuses, that kind of thing. Seth had it first, then … Continue reading
Open
So much has been going on. So much has not been going on. I’m in limbo. Last week Riley went to shadow for a day at a local special needs school. She was so excited. She had no qualms about … Continue reading
The Golden Hat
I simply couldn’t conceive of how devastating it would be not to be able to hear my childrens’ voices. Not to be able to communicate with one’s children, to hear them learn, grow, and express themselves verbally. – Kate Winslet … Continue reading
Posted in appreciation, autism, book reviews, special needs parenting, Uncategorized
9 Comments
Hopeful Parents
I’m over at Hopeful Parents today. Hoping to be a better mother to my son. *It’s come to my attention that the HP site is not loading this piece properly. It takes a minute or two but it eventually comes … Continue reading
Together, 24/7
What is something in your life that you have an attachment to that is somewhat limiting your vitality? This was our question to ponder at last night’s 40 Days weekly meeting. Mine is that I am the only person in … Continue reading
Posted in 40 Days, homeschooling, Parenting, special needs, special needs parenting, yoga
4 Comments
I’m a little loopy after IVIG, but Seth…he’s fine.
Seth had his third IVIG infusion today and it went well. Todd made sure to get the morning off so he was there for moral support. We went at a slower rate, and even had to slow that down when I … Continue reading
Posted in 40 Days, appreciation, IGG deficiency, IVIG, special needs parenting, Uncategorized, yoga
11 Comments
Do No Harm (Phenergan IV Push)
Since Seth’s bad reaction to his IVIG I have tried to get in contact with the doctor who ordered it. He was not there the day of the reaction. Another doctor was on call. I wanted to make sure he … Continue reading
Gentle, gentle
So the other day when Seth had a bad reaction to his IVIG infusion, Todd slipped out during the ordeal and took Riley to the orthodontist before they closed for the weekend. It was imperative they correct a couple of stray … Continue reading
He’s Fine Now
Seth had a bad reaction today during his second IVIG infusion for his immune deficiency. He’s okay now, but it was not good. He did fine his first infusion, and he was fine today, and then they increased the IV … Continue reading
Posted in appreciation, special needs parenting, Uncategorized
22 Comments
Braces
Riley got braces today. Her first dental appointment when she was a little girl was a nightmare for her and one of the worst experiences of my parenting journey thus far. As she got older it was evident she had … Continue reading
PANDAS, Grrr.
I’m over at Hopeful Parents today, worrying about PANDAS.
Posted in PANDAS, special needs parenting, Uncategorized
Comments Off on PANDAS, Grrr.
Snapshots
I’m going on a date tonight with Hot Toddy. It’s been a rare thing for us over the past eleven years, though hopefully it will become a more regular occasion ’cause a friend and I are experimenting with a monthly … Continue reading
Posted in appreciation, marriage, PANDAS, special needs parenting, Uncategorized
4 Comments
Self-care
Todd has today off and is not working until tomorrow afternoon. With his encouragment I am at a hotel two seconds away, and for the next 22 hours, I do not have to answer to anyone. No one will demand … Continue reading
Posted in appreciation, family, marriage, Parenting, special needs parenting, Uncategorized
8 Comments
Glee – You’re on Notice
Shuffling out of my bedroom still half asleep, I’m greeted by my bright-eyed tween with her usual morning after questions. “Did you watch Glee?” It’s our Tuesday night assignment. She can’t watch Glee ’til we’ve watched Glee and screened it. … Continue reading
Posted in appreciation, Asperger's, Parenting, special needs, special needs parenting, Uncategorized
Tagged Glee
13 Comments
Her Mother’s Eyes
Riley steps out of the shower and I put the towel around her, draping it over the top of her head so just her face peeks out. I pat her dry a bit then hold her by the shoulders and … Continue reading
Posted in Asperger's, Parenting, special needs parenting, Uncategorized
12 Comments