- The day the child realizes that all adults are imperfect, he becomes an adolescent; the day he forgives them, he becomes an adult; the day he forgives himself, he becomes wise. -Alden Nowlan, poet, novelist, and playwright (1933-1983)
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Category Archives: Asperger’s
Specific Carb Diet….Again
So, we tried IVIG for six months, and while it is doing a bit of good in between infusions, by about the third week Seth’s tics start happening again. His strep titers are still quite high. It is more of … Continue reading
Posted in Asperger's, PANDAS, Specific Carb Diet, Uncategorized
10 Comments
Saying Yes
Hello Asperger’s, Thank you for allowing me to walk with a girl who is so sweet, she absolutely cannot see bad in anyone. Even people who have been mean to her. Thank you for allowing me to bear witness to … Continue reading
Posted in appreciation, Asperger's, PANDAS, Uncategorized
4 Comments
Gentle, gentle
So the other day when Seth had a bad reaction to his IVIG infusion, Todd slipped out during the ordeal and took Riley to the orthodontist before they closed for the weekend. It was imperative they correct a couple of stray … Continue reading
Braces
Riley got braces today. Her first dental appointment when she was a little girl was a nightmare for her and one of the worst experiences of my parenting journey thus far. As she got older it was evident she had … Continue reading
Meditation Before Glee
Busy day, and now in the first lull, the the kids want to watch Glee, which means I have to sit there with them because there are parts I must forward through. Not really into it but it means the … Continue reading
Posted in appreciation, Asperger's, family, Love., meditation, Parenting, spirituality, Uncategorized
6 Comments
The Great Pumpkin had a good run. Well played, Seth O’Neil
When the kids were little they had all kinds of dietary restrictions and candy was a big no. Wanting them to still have the joy of trick-or-treating, we made up a story (thank you Charles Schultz) about The Great Pumpkin, … Continue reading
Posted in appreciation, Asperger's, Parenting
11 Comments
Two Years Together
Thank you to everyone who helped bring Jingle to Riley. We will never forget your generosity.
Posted in appreciation, Asperger's, Service dogs, Uncategorized
Comments Off on Two Years Together
Glee – You’re on Notice
Shuffling out of my bedroom still half asleep, I’m greeted by my bright-eyed tween with her usual morning after questions. “Did you watch Glee?” It’s our Tuesday night assignment. She can’t watch Glee ’til we’ve watched Glee and screened it. … Continue reading
Posted in appreciation, Asperger's, Parenting, special needs, special needs parenting, Uncategorized
Tagged Glee
13 Comments
Her Mother’s Eyes
Riley steps out of the shower and I put the towel around her, draping it over the top of her head so just her face peeks out. I pat her dry a bit then hold her by the shoulders and … Continue reading
Posted in Asperger's, Parenting, special needs parenting, Uncategorized
12 Comments
Ginger
If you’ve been reading my blog for a while, you might remember my role model, Ms. Ginger. I wrote about her here, and here. I’m writing about her again over at Hopeful Parents today. Love.
Posted in appreciation, Asperger's, Hopeful Parents, special needs parenting, Uncategorized
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Pass it through the window…
We’ve just discovered our deck. This sounds ridiculous, we’ve lived here for over three years, and have hardly ever spent time on our deck. For one thing, it was ugly. But this summer, Todd threw a couple coats of sealer … Continue reading
Posted in appreciation, Asperger's, Uncategorized
5 Comments
Tad Shy from the 9th Planet
www.9thplanet.org I have a feeling a lot of kids are going to love this.
Posted in Asperger's, special needs, Uncategorized
3 Comments
Executive Function
I have several phone calls to make. I have laundry to do. I am fixing Riley’s supplements. Where was I? Oh…I was going to call Lidi to see how she’s holding up since her dog died. Watching me spin my … Continue reading
The Halloween Catalog
Every year a Halloween Costume catalog arrives in the mail. Riley desperately wants to flip through it. She wants to see the girlie girl costumes. She wants to see the animal costumes. She LOVES Halloween. The catalog calls to her. But … Continue reading
Theater Arts Camp – A Success!
Today was the last day of theater arts camp. Riley was the only kid with special needs and she was with an aide she didn’t know previously and kept the fact she had an aide undercover. Her aide was young, … Continue reading
Posted in appreciation, Asperger's, Love., music, special needs, special needs parenting, Uncategorized
11 Comments
The Teacher
At the end of four weeks of music camp, staff approached us and asked if we might consider sending the kids to two more weeks of theater arts camp. Music camp is an inclusion camp for typicals, and kids with … Continue reading
Posted in Asperger's, special needs
11 Comments
Renaissance: : “a movement or period of vigorous artistic and intellectual activity.” -Webster’s
My computer is acting wonky, and I’m not even sure if this will post, so I’m keeping this short and sweet. The last day of camp the kids put on a Renaissance performance. Riley was a lead. Seth had lines … Continue reading
Posted in appreciation, Asperger's, autism, special needs
3 Comments
Proud Little Mermaid
If any of you read my contribution to the Special Gifts anthology, you would know about our early experiences with swimming pools and Riley. The sensory bombardment of a locker room, a hot day, bright sun reflecting off the water, … Continue reading
What’s the Best Case Scenario?
Tonight I was feeling antsy. Not quite in a funk, but teetering, despite my best efforts to stay positive. I needed to get outside. We went to a park and as the sun went down we watched herons and the … Continue reading
Posted in appreciation, Asperger's, spirituality
7 Comments