Pretty Woman

Flipping through the channels, we accidently get sucked into Pretty Woman on TBS. We hadn’t seen it in forever.

George Castanza is in Pretty Woman? And so is Laura San Giacomo! Who knew? Doesn’t she have a kid with autism? Maybe I’m wrong.

Slumped on the couch, leaning on HT, I ask,

“Do you ever wish I were a hooker?”

“No,” he says.

“Do you ever wish I were Richard Gere?”

I take a sip of wine and admit,

“Sometimes.”   

And he laughs.

 

Last line of the movie:

Him: “So what happens after he rescues her?” 

Her: “She rescues him right back.”  

Posted in marriage | 7 Comments

Smart Girl/Sticky Situation

 

Yesterday, Ms. Riley was invited to an impromptu last day of school celebration at one of her friend’s houses. There were ten little girls. I walked her over to the school to meet the girls and then we all walked back to the house, which is just at the end of our street. I stuck around for a while, talking to the mom, (fellow Girls on the Run coach and wonderful friend who “gets” Riley). I could have stayed all afternoon and chatted with her, but I felt it was important, for Riley, for me to leave.

“Riley are you okay for me to go? I’ll come get you in a couple of hours?”

“Yeah,” she said. “I’m fine here with my peeps.”

I left, confident she would be okay.

But wait…it gets better.

Fifteen minutes before I was planning on getting her, the phone rang. It was Riley. I’d never received a phone call from my daughter before.

“Mom. Two of the girls who are coming to my birthday party Sunday got mad at each other, and one doesn’t want the other one to come, and I don’t know what to do.”

(It is worth noting, the girl who did not want the other girl to come to Riley’s party was the little sister of the host, and just completed kindergarten. Riley takes her point of view as seriously as she does the girls her own age, which is something I love about her).

“Riley. Tell the girl who doesn’t want the other to come, that it is your party, and you are friends with both of them and they need to work it out.”

Insert game show music when contestant makes a mistake, gives the wrong answer and is kicked off the show. Whunt whunt whunt

“But MOM! She will be really mad if the other one comes!”

I could feel her ramping up.

I took a breath,and tried again.

“Riley…you are so grown up to call me and discuss this. This is a very *sticky situation.* Let’s think about what we can do.”

Evoking “sticky situations” allowed her brain to access her beloved American Girl books (she’s read a ton of them already and got more for her b-day) and to know…

1) this is a problem all girls might run into.

2) these problems have possible solutions.

3) she’s really growing up to be encountering situations as sticky as this.

“Riley, how about this? Tell her you can’t possibly make this decision right now, and it is something which needs to be discussed with your parents.” 

She sighed, and I could feel her relief over the phone.

“Okay,” she said.

“I’m going to be picking you up in just fifteen minutes, okay?”

“Okay Mom,” she said.

“You did the right thing to call. You are just acting so mature now that you are ten. I am very proud of you.”

There was a pause and then she said,

“Mom. I love you.” 

Her voice sounded so cute and little over the phone.  

My heart soared.

Saying I love you first is brand new for her.

Posted in Asperger's, Parenting | 20 Comments

Tucking Seth in on his last day of first grade

“So how was your last day of school?”

“Good.”

“Did your teacher yell at anyone?”  FYI his teacher in not one to yell at anyone ever…I just live to make him laugh with the irony of my questions. He’s used to it.  

“No.”

“Shove anyone down?”

“No.”

“Punch anyone in the face?”

“No.”

“Kick anyone in the shin?”    

He’s had enough of my shenanigans so he feigns sleep, pretends to snore…

“Ker—-shooo.

Ker—-shoo.”

“Cashew? Don’t mind if I do!” I say, taking a nibble of his ear. Long running joke, his ears taste like cashews. He squirms away, putting his blanket over his head. I pull it down.

“Mom, who was that guy, that bit that guy’s ear off?”

“Mike Tyson?”

“Yeah.”

“Why did he do it?”

“Well. He seems to be someone who has no impulse control.”

“What’s impulse control?”

“Most people have urges to do things, but our brains take a moment to think about them, and we stop if the thing we feel like doing is inappropriate, or violent, or harmful. Impulse control is what lets us take that moment and stop.”

He thinks about this for about thirty seconds then says,

“Some people think ____ (the kid who bullied his class all year) is mean, but I think he just has a problem with his brain.”

“I think you’re right buddy.”

He looks at me thoughtfully.

I kiss him good-night on the cheek.

He wipes it off, per usual.

Posted in special needs siblings, Uncategorized | 8 Comments

Mennonite in a Little Black Dress

Buy it.

Read it.

Laugh your hiney off.

 

P.S. My new favorite word is “vainglorious.”

Posted in Uncategorized | 14 Comments

She’s Back

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After feeling progressively worse for the last six months or so, our beautiful daughter is back. The sweetness is back. Two weeks ago she could not climb this play structure. The anxiety had her shrieking by the first rung. Now she can.

Requests to get dressed, or get her shoes on, or brush her teeth, or do virtually any activity of daily living are no longer being met with blood curdling screams. She’s coping with her emotions. She’s aware of other people and their feelings. Who She Really Is, is being allowed to shine through.

The other morning, I wasn’t feeling well. Todd found her in the kitchen adamantly trying to squeeze a tea bag into a cold cup of water. She didn’t know to heat it first but she was trying to take care of me. She’d already made me a card. All this on her own.

We don’t do a sign of peace at church. This church hugs it out. The past two weeks, Riley circulated all over the congregation, (by herself) greeting people, offering hugs. Yesterday was birthday Sunday, where all the birthdays of the month go up to the front and she bopped right up there, took the mic, told everyone how old she is, and enjoyed being serenaded with the birthday song.  Todd and I were just shaking our heads.

Yesterday morning, I asked her to fill out thank you notes from her birthday gifts, and she sat down and did it, with gusto. No talking her into it. No meltdown. No help needed. No “I don’t want to,” or “It’s too hard,” or “I’ll do it later.”

I am not kidding, the last 6-9 months, every little thing, EVERY THING was a huge production. Todd and I were hanging on by a thread. It wears on you over time and you start to lose your compassion. You start to lose your mind. Our house had gone to pot. No energy for deep cleaning, or yard work. It was hell for us, and even harder for Riley. Seth suffered too.   

Three weeks ago I was dejected. I was giving up hope. I know that’s why my sister came. She just knew I needed help.

Todd called from work one day a few weeks ago and told me to look outside. There was a huge rainbow arching across the sky visible from our backyard. Todd was at the hospital, eight stories up, five miles away, right there in the sky with it.

Part of me gasped, I wanted to hope, so much. Part of me was like, eff the rainbow, I am so tired. This is no way to live. I admit to immediately flashing to a certain biblical review (hello M) and the absurdity of a God who would annihilate just about everyone and then offer “hope” in the form of a rainbow. Sorry Charlie, I don’t believe that.

I don’t know if it is the gluten free/dairy free diet. I don’t know if it is the new supplements. I don’t know if it is luck. Or prayer. It all coincides with the new doctor, so it seems we were right to make the leap.   

I don’t know why it has been so hard, but I do feel there is a reason. I’m being called to do something, and I could not do it well without really knowing the darkness. I mean, we’d known darkness, but it had been a while. Riley is being called too. Her story is hers to unfold.

This on-line community buoys me. I appreciate all of you so much. Thank you for coming back time and again. Thank you for caring about this girl, this family.

My baby is ten and she’s back.

Thank you for celebrating with us as we emerge.

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Posted in Asperger's, family, Unity church | 22 Comments

Bunny

In my last post, I mentioned the author Gayle Forman, whose book If I Stay depicts the journey of a teenage girl who is in a coma. Throughout the book she is deciding if she will stay and live, or if she will die. I read it just three weeks ago.  

On May 23rd, Windsong, the chorus I have the privledge of singing in, had our spring concert. The next day, one of our members had a massive heart attack and has been in a coma ever since. Her family has had to make some very hard decisions. They took her off life support Friday and although she continues to breathe, her time on earth appears to be coming to an end. 

Singing robustly in a group of 30 women one day, on life support the next.

Her name is Bunny. She is one of those friendly people, with such a sweet face. She makes newcomers feel at ease with her broad welcoming smile. 

Many members of Windsong have been keeping vigil at Bunny’s bedside, praying and singing. Singing and praying. The line between the two gets blurred. Singing and praying, seemingly one in the same for this group. There have been many e-mail updates, and many messages of love and shared prayers flying back and forth between chorus members. Jen Telischak, one of our powerhouse singers, wrote a beautiful tribute to Bunny which you can read here. It tells you a lot about Bunny, and a lot about our chorus.

It appears Bunny has decided. It also appears one of her final encores is to bring the members of Windsong closer together, in a big way. 

May all who love her be comforted.

May we remember her beautiful smile, and pay it forward.

Posted in Uncategorized | 5 Comments

I coulda’ been a contender… @$&#*!!

Recently I received this in a blog comment:

Hi Michelle – My name is Nathan and I am a producer creating a documentary for The History Channel on the history of cursing / swearing. I loved your 2006 article about your children and swearing, it’s perfectly relevant to our documentary. I have tried other means of getting in touch with you, to no avail, and it seems this is my best chance. Please call me at 212.xxx.xxxx or xxx.xxx.xxxx to speak about your involvement.

Thanks and hoping to hear from you.

Nathan

~~~

He was referring to a little piece I did for The Imperfect Parent. I wrote it in about five minutes (it had been a hard day) and hit “send” without really thinking it through. No more than ten minutes later, I got an e-mail back. They loved it. 

 ~

So, I smiled and picked up the phone and called Nathan.

~
 
He likes me, he really likes me.
 
~
He was all business.
~
“As you can imagine, people have strong feelings on both sides of the swearing issue. We’re looking for someone who is comfortable swearing in front of their kids, or allowing their children to swear.”
~
Sheepishly, I told Nathan, “Well…you see….I wrote that kind of tounge-in-cheek. I actually don’t swear in front of my kids.”
~
Nathan let out a sigh and said, “Well that kind of changes everything.”
~
Struggling to keep some of my allure, I blurted out, “But I really want to! It’s always on the tip of my tongue!  I let it rip after they go to bed, and I swear on my blog when I’m really frustrated.”
~
Nathan was bored with me. I could tell.
~
Wanting his approval, I threw myself under a bus, and recommended a friend of a friend, (a brilliant writer, her novel If I Stay, is about a teen in a coma deciding if she is going to go or stay) who does swear in front of her kids, and refuses to look at it as a moral issue. Nathan had her googled before I could even give him the link.
~
After Nathan got what he was after, he had no use for me. 
~
   
All my hard work, holding my tongue in front of the kids. All my swearing for two. And this is how it goes down? 
~
Being a “good girl” doesn’t pay. 
~
I might have to rethink things around here.
~~
~~
~~
(Apologizes for the squiggles in this post, for some reason my template is removing my spacing when I publish, and the easiest way around it is to just add squiggles. I’d hate to make you wait for this hard hitting material while I figure it out).     
Posted in Uncategorized | 11 Comments

In the morning, she’ll be ten.

The next time she opens her eyes, she will be ten.

Ten years ago, her nursery was ready. Jungle animals and vines, monkeys hanging from the ceiling. We’d poured all our nervous excitement into her room. We didn’t know she was a “she” yet. Todd wanted to be surprised. We spent many hours in her room before she got here. Rocking in the glider rocker. Todd in the chair, me on the matching ottoman, my back resting on his lap. He’d run his fingers through my long hair as Kenny Loggins lullabies played in the background. I would drift happily in and out of sleep, watching the jungle animals turn softly in the warm early summer air, loving our baby so very much already.

Todd was the first to know about her. We’d been trying. I took a pregnancy test, and when the line didn’t turn pink instantly, I came out of the bathroom dejected. I curled up in a ball on our bed and waited to be consoled. Todd gave me a hug, and excused himself to use the bathroom. I continued to lay there, feeling sorry for myself, waiting for him to get back to console me some more!

The next thing I knew, he was in the room,

“You might want to take another look at this,” he said, holding the stick I’d peed on.

The line had turned pink.

I leaped from the bed, screaming, jumping up and down. We hugged and laughed, and cried.  

We were deleriously happy.

Tucking her in to bed tonight she was so excited about her birthday tomorrow. She asked me to tell her a story. I told her the one about this couple who wished for a baby. The one about how her daddy knew about her first.

I told her God thought her up, and said, “She’s perfect,” before sending her our way.

I told her how lucky we are to be her parents. How incredibly blessed we are to have her for our little girl. How no other little girl would ever do.

Todd has to work tomorrow, so the only time the four of us will be together is in the morning before Seth leaves for school. The places are set. The presents are wrapped and on the table. We’ll have cupcakes for breakfast.

The birthday girl dreams.  

May all her wishes come true.

Posted in Uncategorized | 24 Comments

New Glasses

new glasses

 

I had no idea how big my pores were   getting…and why had no one let me in on the little nose hair issue I had going on?

All I’m sayin’.  

Better grooming through improved vision.

Who’s with me?

Posted in Uncategorized | 15 Comments

I had an experience at church on Sunday…

The love of God is loving me

and resting in the love of God

I know that all is well.

                                                                   -Rickie Byars-Beckwith

 

Sunday I got to bring my sister to church! She’s a Unity person too, though the town she lives in does not have a strong Unity community, so it was wonderful for her to be able to join us for the service.

Rev. Hank talked about something called neuro-linguistic programming(NLP). He described the concept like this, you think of a really happy and good moment, and get into a wonderful positive zone over it, and then combine the memory or vision with a physical movement, such as an ear tug, or maybe tapping a finger on the back of your hand, something subtle you can do without drawing too much attention to yourself, creating a physical sensation in the body. You practice this good thought combined with the physical gesture, and in short time you will be able to snap yourself out of a negative spin by merely doing the gesture. The good feeling will be triggered by the gesture alone. 

Interesting concept. I sat there listening, and of course wondering how I might be able to teach Riley this, to help with her anxiety.

After the talk, and meditation, Kathy Sullivan, our music director, led us in an “experience” in song.  Because just hearing or singing a song ain’t enough for Kathy. We gots-ta experience it! She taught us a Rickie Byars-Beckwith song, the lyrics,  

The love of God is loving me

and resting in the love of God

I know that all is well.

Then,

The grace of God is grace in me.

and resting in the grace of God

I know that all is well. 

Love of God. Grace of God. Peace of God, and so on, add a word. Then, as the music played, Kathy instructed us to go back in our minds, and find a memory when we absolutely knew all was well, and to connect it with a physical gesture, ala NLP. Eyes closed, with my sister on my right, I immediately flashed back to a memory of an Easter when I was about five or six years old. My grandmother had lovingly and joyfully made us matching dresses, and I knew, we were beautiful. My sister and me. No doubts about my worthiness. No doubts about my body. No doubts about my place in the world. I was just reveling in our awesomeness, and in Gramma’s love. Strutting around in the sunshine, happy to be me.

Now, I am an easy meditator. I’ve been doing it a long time, and can usually let the thoughts go, and slip into stillness in a heartbeat. But this time, sitting there beside my sister, eyes closed, I had the memory of the dresses, and a flashing white light was happening behind my eyes, a rapid on and off, and I felt my gramma right there with us. She made her physical transition in 1997, but I felt her, as clearly as if she’d been sitting there beside us. I also somehow felt she had put the idea in Kelli’s head to hop in her car and pay us this surprise visit. Feeling my grandmother’s presence so strongly, and feeling her love again on a visceral level, brought tears streaming down my face, and as I came out of the “experience” I reached over and held my sister’s hand. Later that evening, a healing between us would take place.  

(And yes I did my little NLP gesture during the “experience” and it will remain a subtle and private move)! 

Easter dresses

 

 

 

 

 

 

 

I searched and searched and finally gave up trying to find the photo. Of course once I let go trying to find it, it turned up. Left to right it’s me, our young mom, my brother Christopher, and my sister Kelli. Note the special hand knitted pom-pom on my hat, and Kelli’s fancy bag, and of course our knee socks. BTW, I have not seen my brother Chris in a tie since, with the exception of his wedding day.

What a memory! What an experience! What a weekend! What a church!

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The love of God is loving me

 and resting in the love of God

I know that all is well.

 

Posted in spirituality, Unity church | 10 Comments

Sister

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Saturday, around lunchtime, I got a call from my sister. She was halfway to Ohio (from upstate NY) and was coming to surprise us, offering Todd and I a date night, and she was bringing her massage table. She recently became a licensed massage therapist.

Upon hearing the news, the kids let out a big, “YAY!!!!”

After a really dark stretch, it was like she brought the sunshine with her. We made up for Todd’s birthday dinner, taking a long walk to a new restaurant, not once looking at the clock, and walking back leisurely at night. We used to walk at night all the time before kids. The energy is so different at night. We had our best talks then. We’ve really missed it. But there we were, holding hands, talking, laughing, making plans. It was sooo good.  

Sunday, we went to church (more on that amazing experience later, it was a good one) and then Kelli and I were off for a free day, at the art museum, the Botanical Gardens and shopping for a certain b-day girl who will be ten this week. 

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Later, in the evening, Kelli insisted on getting out her massage table. She went to school for a year and a half to learn massage, and in all that time, I’d never asked for a massage from her. I was insecure about it.  There was always a reason not to do it, but this time I allowed it.

It was a profound experience, being massaged by my sister. Our relationship was hijacked when we were very little girls, by alcoholism, poverty, and lack. Dysfunction did not draw us together, it made us hole up in our seperate corners, saving ourselves the best ways we knew how.

We’ve been working on our relationship for years, but during the massage I let all mistrust fall away. It felt like all the hurts we’d heaped on each other from childhood on, any unloving we did toward each other became untangled, melting away with each loving touch. There is so much more to be said about the experience, but I am not quite ready to write it yet. Let’s just say both of us were crying at the end, and a great healing had taken place between sisters.

So now, I can tell a new story.

I’m no longer “the island.”  The one with no family support.

I have a sister, who drives five hours to give us a break, to support us, to nurture me.

I am loved, and I am blessed. 

She is on her way home now, after having stayed two nights. Todd and I got a second moonlight walk in last night after my massage. I still can’t believe she was here. It was an incredible surprise.

Thank you Kelli. I love you.   

Amen.

  kelli profile 2010

Posted in Uncategorized | 23 Comments

Riley’s Aide Made HT Cry (almost)

Find out how over at Hopeful Parents today.

Also…Jingle could use some love if you are so inclined. She’s such a good dog afterall.

Have a wonderful weekend!

Lovingly yours,

MO’N

Posted in Uncategorized | 2 Comments

Returning the Cello

Today is the day we take Riley’s cello back to the violin store we’ve been renting it from. I gave her plenty of warning. Allowed her to spend a couple extra days with it.

This morning, when it was time to go, she said from the living room,

“Mom. We can’t take the cello back. She’s sick!”

Walking into the room I saw this,

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 She looked up at me with sorrowful eyes,

“The A string is loose. The D and C strings are off tune.”

She slumped and sighed, adding, “G is okay.”

It’s sad saying good-bye to a friend. Even if they did give you a shit load of trouble.

Posted in Asperger's, cello | 12 Comments

Picky Eating Solutions

“It’s not so much that healthy food is expensive as much as fake food is cheap.”

-Betsy Hicks

                                                                   betsy-bio-photo

My friend Betsy’s book is out on Amazon today! 

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Betsy is mom to three beautiful children, one profoundly affected by autism. She has counseled thousands of families on special diets, and has given presentations on nutrition all over the world.

This book is not a “special diet” book however. It is about getting back to the basics of healthy eating, and strategies to get your picky eaters to try new foods(even if they are already teenagers)! It is full of wonderful advice, real life scenarios, and information on making small, non-overwhelming changes, tips on what utensils and cookware to have on hand and how to stock your kitchen. You can read it in just a day or two, and start to make small changes which will make a big impact on the health of your family.

It is not “Food,Inc.” scary. Pinky swear.

Betsy’s writing is so engaging, reading her book is like sitting down and chatting with a good (non-judgemental) friend.  

I thought I already knew a lot, but I learned so much from Picky Eating Solutions, and implemented some of the “solutions”  before I even finished the book. The sub-title is: Bringing the Joy of Real Food Back to the Table. That’s exactly what this book will help you do.  

Order it on Amazon or through Elementals Living here.   

Posted in Uncategorized | 7 Comments

GF/CF…again

 

Our Canadian doctor of Chinese medicine recommended we get some supplements (which for this law or that, she can’t ship) from a local doctor whom she recommended. So we went to the local doctor, and she said she would handle Riley’s situation differently, with different supplements, and she explained why. So we were put in this awful position of having to choose whose ideas to go with. And since Riley’s anxiety has been out of control, and it would make sense to have someone local to go to, we went with the local doctor. Which felt like betraying our Canadian doctor whom I love so much.

I was so confused and torn.

The local doctor wants us to go wheat free/dairy free again. I explained we’d already done this for a year and a half, with no gains, but she said given Riley’s propensity for constipation if she misses even two doses of magnesium, she does not believe her gut is healed. She thinks with the right combinations of healing supplements, and a GF/CF diet, we might have better results, and also reduce Riley’s anxiety. 

Since Seth has issues as well, we will be doing the diet as a family.

So I have been tearing up the kitchen again and feeling utterly overwhelmed. Due to our kids’ health issues we already eat really, really well. No high fructose corn syrup. No chemicals. No preservatives or food dyes. Almost 100% organic.

The GF/CF diet is much easier now than it was even five years ago. So much more is avaiable in the stores and on-line in terms of ideas and recipies and support.

My kids really didn’t bat an eye when we told them. They don’t balk at the special diets at all. Granted it’s because I bust my tail to provide yummy alternatives to anything they could possibly want.

But I’ve been sooo very overwhelmed.

Part of it is the extent of Riley’s anxiety lately. I am worn out. I seriously feel PTSD from clay and cello classes and Girls On the Run and the now abandoned martial arts this season. She screams like Jamie Lee Curtis in Halloween, over the most trivial seeming things. Todd and I are limping along, coming up enough to gulp a breath of air before going under again.  We watched the movie Horse Boy the other night (I’ll blog more about that beautiful film later) and the term “emotional incontinence” came up. It fits her. It really does. There is no filter.

So it’s been stressful, but really? If it was just us I wouldn’t be so overwhelmed about the diet. Why am I freaking out?

I’ve spent some time with this question, and basically it’s the perceived judgements from others. As if we’re doing this to be difficult. Or grasping at futile interventions. Or making a big deal out of nothing. 

I’ve seen the eye rolls.

I smell the disapproval.  

And you know what?

I don’t get it. How you could judge parents for trying to help their children, by whatever means. Especially through something as innocuous as dietary changes and healthy eating?

That is screwed up.

So another opportunity presents itself for me to heal, and put more emotional distance between me and those who do not support us as we do our very best to parent these beautiful kiddos. 

Parents of kids on the spectrum need support. Period.

Let freedom ring.

Posted in Uncategorized | 32 Comments

Ribbit

I wrote this post last night, but didn’t have the time or energy to look it over or run a spell check ’til now.

I over did it. We had chorus rehearsal yesterday. This morning, I practiced singing on the way to and from the Girls On the Run 5K in the car(50 minutes each way). Then we had rehearsal again today before the concert. But the thing I believe really did me in? I whooped and hooted too long and hard for all the girls at the race. How could I not?   

So….the concert was going along nicely, and then two songs before my solo, my voice went all Froggy went a courtin’ with a two pack a day habit. I even had to lip synch for a song, which isn’t good, when your solo is barreling down on you like a locomotive.

I whispered to Melody at my right, “My voice is gone.”

Did Melody say, “Sure, no problem. I’ll step in and do your solo?”

She did not.

She slipped me a tic-tac.

I put it in my mouth and crunched it to bits, because I seriously had about 20 seconds, and I didn’t want to inhale it while I sang.

When it was time, I stepped down to the front, and my voice was there!

But then it left me for a second.

And then it was back!

So it wasn’t 100% suckage.

But it wasn’t perfect.

I was brave. And the point is to be brave.

So I’ll try not to cringe, and I’ll try to remember the whole “learning is a process and you don’t have to be perfect” thing we tell Riley all the time. 

Windsong is a supportive bunch. So many people told me I did a good job. They didn’t say, “Good try.”  They said, “Good job.”

Todd said it was good, but he doesn’t know.

Riley was brutally honest,

“Except for that one second, it was great. I think your timing was just a tiny bit off, but you got all the notes. It was good you did it Mom.”

Seth apparently daydreamed through the whole thing, because he asked afterward,

“Why didn’t you do your solo?”

Seriously dude, I was two feet in front of him. And I was projecting! What stage presence I must possess!

Oh, well. 

It could have been a lot worse.

I could have choked on a tic-tac.

I could have lost my voice completely.

Or fainted.

Or died.

Or not been brave at all.

Posted in Uncategorized | 13 Comments

Five Kilometers, Zero Tears

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Today was Riley’s 5K with Girls On the Run! We woke up at the crack of dawn and drove almost an hour to Akron for it.

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It was at this point during her first 5K she became overwhelmed. With the crowd at the starting gate. This time around, she knew what to expect and it was all good. She knew it would be okay for her teammates to keep their own paces. She knew some friends would fly ahead of her, and some would be far behind. Just like in practice.   

She was very focused!

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 Nothing was going to stop my girl.

 

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Look at her go!

 

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HT had to work today, so Little man waited with Riley’s friend’s dad while we ran. I look forward to the day Riley is waiting around, supportive of him for whatever makes his soul light up. We’ll be there buddy!

 

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I love this shot. It was a misty morning. The determination in her body!

 

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 Here we are at the finish.

 

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I love this girl so much.

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It was nice we were able to have such a positive experience before I go sing the second solo of my life in a couple of hours. You know, since I’ll probably die.

At dress rehearsal yesterday our director said, “You sound good, but you look terrified.”

That about sums it up. At least the terrified part.

You’ve all been so good to me.

See you next lifetime.

Love.

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Windsong Concert Sunday

windsong May 2010

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Windsong celebrates a thirty year journey in song this weekend! If you come to the concert, I promise to do a short solo. ‘Cause I totally do stuff like that now.  

Love.

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A Mother’s Advice On Teaching Her Child

Recently, a reader named Liz asked the following questions in the comments to this post:

Teaching and Learning Necklace in Sanskrit and English

I would really love to hear more from you about what works when trying to teach your daughter. I’ve been puzzling over how I would go about teaching someone like Riley (I’m a violin teacher). Is there anything that has been done that’s really effective?

I was wondering if maybe giving her warning in advance would be effective (like, this week we’ll work on bow holds, next week we’ll work on tuning, week after we’ll learn a new piece of music, etc.). Then maybe getting the actual feedback wouldn’t sting so much?

Also, when does the anxiety bit kick in? Is it when she gets the instruction (move your fingers like this…), or if she doesn’t get that instruction quite right. Or is it more that she’s upset that she hasn’t been practising properly?

Also, you said that she experienced the same thing with learning the piano and then was able to pick up from watching you learn. Would it help if the teacher started showing you the same thing while she watched?

Again, I’m just throwing out the ideas that sprang to mind, I have no idea how well any of them would work (or how many have already been tried). I would love to hear your thoughts on the matter.

Liz, thanks so much for the questions. I’ll do my best to answer. First let it be known, what I am saying can only be applied to Riley, no broad sweeping generalizations about autism because the kids are all so different. Also, these are my observations in general on teachers, not just on cello.

The one essential thing to be successful when working with Riley is to do it in a spirit of love. This is tricky, because you can’t make a teacher love her. It can’t really be taught. She is a challenging child, and if a teacher is teaching to fulfil their own ego, they are going to quickly resent Riley, and resort to blaming her (or her parents) for their own failure. Believe me when I say no one is trying harder than Riley. No one wants to follow the rules and please their teacher more. A teacher has to have a lot of self-awareness of their own emotions, because your buttons will be pushed. If you are someone who says, “No. I’m fine. It’s my job!” And deny, deny, deny what you feel? You scare me. Because your words don’t match your energy, and that is very confusing for a kid like Riley. She may not read social cues well, but she feels energy, and a tight smile slapped over a seething face does not fool her. She reads loud and clear that in your opinion, she is the problem, and she internalizes this.   

A teacher has to be more concerned with helping Riley achieve competence, than worried about their own competence. Teachers who are out to prove what great teachers they are don’t do well with Riley. Riley will stump even the most seasoned teachers. They aren’t going to get it perfect. This is what Riley is here to teach. She’s wired in a way which makes it impossible for her to conform to the old way of teaching. Even if she wants to! If you are going to be successful with her, you will need to stretch and grow. If you choose to expand, the rewards will be magnificant. You will experience euphoria. Much frustration along the way but oh the nirvana, when it clicks. And then it might not click the next time, and you have to accept that, and keep looking forward. 

I was wondering if maybe giving her warning in advance would be effective. (like, this week we’ll work on bow holds, next week we’ll work on tuning, week after we’ll learn a new piece of music, etc.) Then maybe getting the actual feedback wouldn’t sting so much?

Advanced warning can work both ways. Sometimes warning just gives her time to ruminate! Picking one thing to work on, and only one thing to offer feedback about per lesson does sound like a good idea. It does not guarantee she won’t melt down over the feedback, but to limit it to one goal would be less threatening. She’s had lessons where she can’t get through a 20 second song without being corrected six times. Bow grip. Elbow. Placing of the fingers on the strings. Posture. Bow on string, etc. These tiny bits of feedback, were given in a loving and gentle way, but were still too much for Riley to process while attempting to play a piece.

What would work better is to have the teacher mirror her, and ask Riley to point out what the teacher is doing wrong. Make it a game. I correct you. You correct me. Make it light hearted. Go OVERBOARD with wrong posture. Be breezy. Music lessons tend to be so very serious.

Also, when does the anxiety bit kick in? Is it when she gets the instruction (move your fingers like this…), or if she doesn’t get that instruction quite right. Or is it more that she’s upset that she hasn’t been practising properly?

The anxiety bit is her baseline. If you were holding her hand, walking down the street, you would be surprised how often her body flinches over typical everyday sensory bombardment. Your hand would get squeezed out of fear, more than you can possibly imagine. This is Riley, keeping it together, minute by minute throughout her day. Now add the grave seriousness of music lessons. It’s “important.” Now add a processing delay, that gets forgotten about because she’s so darn smart. You give an instruction, and just as her brain starts to make the correction, you give another, and another and what you really need to do is just stop talking, and give her a minute to process the first thing. Have you ever had a lot of people talking to you all at once and you just want to tell them all to shut up! One at a time please? I imagine this is what too much rapid fire feedback is like for her. Only she can’t tell a grown up to shut up. What she can do is scream and hide under a table. I don’t think she is upset because she hasn’t practiced properly, I think she is just overwhelmed in general at her lessons. And she’s a perfectionist. A teacher can’t match Riley’s perfectionism with their own perfectionism. That will sink a lesson every time.

Also, you said that she experienced the same thing with learning the piano and then was able to pick up from watching you learn. Would it help if the teacher started showing you the same thing while she watched?

Yes. She would learn from watching me, if I were so inclined to learn the cello. I am frankly burned out from having to be at every single lesson of anything she has ever taken for the last ten years. This mom has never had the pleasure of cheerily dropping off her kid at cello, martial arts, clay class, gymnastics, dance, piano, a friend’s house, violin, Girls on the Run, any activity ever. I have to be there and I have to be “on.”  If I have to take the lesson myself, it is hardly worth paying someone else to teach her.

So, the main things I would say are check your ego at the door. Use less words. Three compliments for every correction. Rediscover your own sense of joy, and share that part of you with your students.  

Teachers are incredible people. I love when teachers want to learn. I love when they are interested and ask questions, and want suggestions. As painful as it is, I also respect when they admit they are in over their head. Riley’s cello teacher is a warm person, who is really used to teaching cello a certian way. I believe she could have been successful with Riley because her heart was in the right place and she had a lot of self-awareness. Her ego was not the problem. (She might have developed a twitch not being able to correct Riley’s bow hold!), but I know she could have done it.

The thing is, there is an excellent music therapy program we believe will suit Riley’s needs better, so that is our next move. I’ll be posting more about that later.   

A final thought on teaching. It isn’t a downloading of knowledge from a wiser person to a less wise person. Think about the really good teachers you’ve had. What was happening? It felt fluid, didn’t it?   

My friend Zoey makes jewelry out of “found words” in vintage books. She was delighted to discover the Sanskrit symbol for “teaching” is the same as the one for “learning.”

Teaching/learning. 

Learning/teaching.

They are co-creative endeavors. 

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Charlie Bit Me, (and I need help)

It started with Jessica and her affirmations. After I watched her, the “Charlie Bit Me” video showed up on the screen, and I happened to click on it. The little boy’s accent and the baby’s smile did me in.

But wait, there’s more!

And it doesn’t stop there!

You’re welcome.

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