Search Results for: ivig

I’m a little loopy after IVIG, but Seth…he’s fine.

Seth had his third IVIG infusion today and it went well.¬†Todd made sure to get the morning off so he was there for moral support. We went at a slower rate, and even had to slow that down when I … Continue reading

Posted in 40 Days, appreciation, IGG deficiency, IVIG, special needs parenting, Uncategorized, yoga | 11 Comments

Brain on Fire

I recently read Brain on Fire:My Month of Madness by Susannah Cahalan. It is about a young woman working as a reporter in NYC, who suddenly shows signs of psychosis. She spends over three weeks in the hospital experiencing mania, … Continue reading

Posted in autism, bio-med, PANDAS, PANS, special needs parenting, Uncategorized | 5 Comments

On the Mend

I have never seen Todd sick like he was on Friday. He looked frail and small. He is stoic. He never gets sick. After eight days of being sick, he agreed to go to the ER, and when he agreed … Continue reading

Posted in appreciation, Asperger's, IVIG, PANDAS, Uncategorized, vaccines | 18 Comments

Golden Ticket

Four days into summer day-camp, Seth’s tics started up again. The vocal and the whole body clenching. Has he been exposed to strep? Is he just wiped out tired from all the fun in the heat? Riley said a little … Continue reading

Posted in appreciation, PANDAS | 6 Comments

Helicopter Mom

It’s not that there is a shortage of things to write about. There are always a million things going on, only a teeny portion of which ends up here on the ole blog. Finding time has been the challenge. Doing … Continue reading

Posted in Asperger's, autism, bio-med, IVIG, PANDAS, special needs parenting, Specific Carb Diet, spirituality, Uncategorized | Comments Off on Helicopter Mom

Specific Carb Diet….Again

So, we tried IVIG for six months, and while it is doing a bit of good in between infusions, by about the third week Seth’s tics start happening again. His strep titers are still quite high. It is more of … Continue reading

Posted in Asperger's, PANDAS, Specific Carb Diet, Uncategorized | 10 Comments

Do No Harm (Phenergan IV Push)

Since Seth’s bad reaction to his IVIG I have tried to get in contact with the doctor who ordered it. He was not there the day of the reaction. Another doctor was on call. I wanted to make sure he … Continue reading

Posted in IGG deficiency, IVIG, PANDAS, Phenergan IV push, special needs parenting, Uncategorized | 15 Comments

Gentle, gentle

So the other day when Seth had a bad reaction¬†to his IVIG infusion, Todd slipped out during the ordeal and took Riley to the orthodontist before they closed for the weekend. It was imperative they correct a couple of stray … Continue reading

Posted in appreciation, Asperger's, special needs parenting, Uncategorized | 15 Comments

He’s Fine Now

Seth had a bad reaction today during his second IVIG infusion for his immune deficiency. He’s okay now, but it was not good. He did fine his first infusion, and he was fine today, and then they increased the IV … Continue reading

Posted in appreciation, special needs parenting, Uncategorized | 22 Comments