- The day the child realizes that all adults are imperfect, he becomes an adolescent; the day he forgives them, he becomes an adult; the day he forgives himself, he becomes wise. -Alden Nowlan, poet, novelist, and playwright (1933-1983)
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Search Results for: ivig
I’m a little loopy after IVIG, but Seth…he’s fine.
Seth had his third IVIG infusion today and it went well. Todd made sure to get the morning off so he was there for moral support. We went at a slower rate, and even had to slow that down when I … Continue reading
Posted in 40 Days, appreciation, IGG deficiency, IVIG, special needs parenting, Uncategorized, yoga
11 Comments
Brain on Fire
I recently read Brain on Fire:My Month of Madness by Susannah Cahalan. It is about a young woman working as a reporter in NYC, who suddenly shows signs of psychosis. She spends over three weeks in the hospital experiencing mania, … Continue reading
Posted in autism, bio-med, PANDAS, PANS, special needs parenting, Uncategorized
5 Comments
On the Mend
I have never seen Todd sick like he was on Friday. He looked frail and small. He is stoic. He never gets sick. After eight days of being sick, he agreed to go to the ER, and when he agreed … Continue reading
Posted in appreciation, Asperger's, IVIG, PANDAS, Uncategorized, vaccines
18 Comments
Golden Ticket
Four days into summer day-camp, Seth’s tics started up again. The vocal and the whole body clenching. Has he been exposed to strep? Is he just wiped out tired from all the fun in the heat? Riley said a little … Continue reading
Posted in appreciation, PANDAS
6 Comments
Helicopter Mom
It’s not that there is a shortage of things to write about. There are always a million things going on, only a teeny portion of which ends up here on the ole blog. Finding time has been the challenge. Doing … Continue reading
Posted in Asperger's, autism, bio-med, IVIG, PANDAS, special needs parenting, Specific Carb Diet, spirituality, Uncategorized
Comments Off on Helicopter Mom
Specific Carb Diet….Again
So, we tried IVIG for six months, and while it is doing a bit of good in between infusions, by about the third week Seth’s tics start happening again. His strep titers are still quite high. It is more of … Continue reading
Posted in Asperger's, PANDAS, Specific Carb Diet, Uncategorized
10 Comments
Do No Harm (Phenergan IV Push)
Since Seth’s bad reaction to his IVIG I have tried to get in contact with the doctor who ordered it. He was not there the day of the reaction. Another doctor was on call. I wanted to make sure he … Continue reading
Gentle, gentle
So the other day when Seth had a bad reaction to his IVIG infusion, Todd slipped out during the ordeal and took Riley to the orthodontist before they closed for the weekend. It was imperative they correct a couple of stray … Continue reading
He’s Fine Now
Seth had a bad reaction today during his second IVIG infusion for his immune deficiency. He’s okay now, but it was not good. He did fine his first infusion, and he was fine today, and then they increased the IV … Continue reading
Posted in appreciation, special needs parenting, Uncategorized
22 Comments